❓ A WA parliamentary question seeks details on Department of Health funding for Rare Voices Australia (RVA) and RVA's performance. The response details funding amounts, project outcomes, and lack of a formal funding agreement.
AnsweredQoN 787Legislative Council
QuestionView source ↗
(1) What funding has the Department of Health allocated to the Rare Voices Australia organisation for the following periods: (a) 2011-12; (b) 2012-13; (c) 2013-14; and (d) 2014-15? (2) Which other State Governments provide funding to the Rare Voices Australia organisation? (3) What proportion of Rare Voices Australia's total funding is provided by the Department of Health? (4) What targets or outcome measures are specified in the funding agreement between Rare Voices Australia and the Department of Health? (5) To what extent has Rare Voices Australia delivered on the specified targets or outcomes? (6) Will the Minister table the Rare Voices Australia's annual financial statements covering the period during which the Department of Health has funded this organisation? (7) If no to (6), why not?
AnswerView source ↗
Answered
1 April 2014
Responded by
Parliamentary Secretary representing the Minister for Health
Response time
33 days
(1)(a)
2011-12
$12,778
(b)
2012-13
$60,000
(c)
2013-14
$60,000
(d)
2014-15
$20,000
(2-3) The Department of Health (DOH) is not aware of the nature, value or otherwise, of support provided to Rare Voices Australia (RVA) by other State Government jurisdictions or agencies.
(4) No funding agreement exists between the DOH and RVA.
RVA has received discrete, non-recurring project grants that provide support-in-part to enable them to achieve project outcomes for the rare diseases community that were identified through stakeholder engagement including;
·
development of a Work Plan for the Rare Voices Australia through workshops and engagement with the sector;
·
travel assistance to rare diseases stakeholders to attend workshops;
·
development of an AA rated Website;
·
a survey on health care experiences of people living with a rare disease;
·
Patient Autopsies for Rare Cancers (PARC) Feasibility study to assess patient knowledge and attitudes to autopsy of rare cancers; and
·
to assist RVA and their WA Stakeholders to be part of a Rare Diseases National Road Show and engagement exercise.
(5) RVA has met the project outcomes.
(6) No.
(7) The DOH does not have access to records not in the public domain.
RVA is established, operates and makes financial reports in accordance with Australian Corporations Law (Corporations Act 2001).
2011-12
$12,778
(b)
2012-13
$60,000
(c)
2013-14
$60,000
(d)
2014-15
$20,000
(2-3) The Department of Health (DOH) is not aware of the nature, value or otherwise, of support provided to Rare Voices Australia (RVA) by other State Government jurisdictions or agencies.
(4) No funding agreement exists between the DOH and RVA.
RVA has received discrete, non-recurring project grants that provide support-in-part to enable them to achieve project outcomes for the rare diseases community that were identified through stakeholder engagement including;
·
development of a Work Plan for the Rare Voices Australia through workshops and engagement with the sector;
·
travel assistance to rare diseases stakeholders to attend workshops;
·
development of an AA rated Website;
·
a survey on health care experiences of people living with a rare disease;
·
Patient Autopsies for Rare Cancers (PARC) Feasibility study to assess patient knowledge and attitudes to autopsy of rare cancers; and
·
to assist RVA and their WA Stakeholders to be part of a Rare Diseases National Road Show and engagement exercise.
(5) RVA has met the project outcomes.
(6) No.
(7) The DOH does not have access to records not in the public domain.
RVA is established, operates and makes financial reports in accordance with Australian Corporations Law (Corporations Act 2001).
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