❓ Hon Giz Watson asks about support services and funding for families with children who have tracheostomies. The Minister for Health responds by outlining existing services and eligibility criteria for funding.
AnsweredQoN 5629Legislative Council
QuestionView source ↗
Further to question on notice No. 5217 asked on 6 March 2012, regarding the Home and Community Care (HACC) program, I ask —
(1) Is the Minister aware that the Disability Services Commission does not have a range of funded options to support families with a child or infant with a tracheostomy?
(2) Is the Minister aware that the CATCH service is available for support to families with a child or infant with a tracheostomy, but that there is currently no funding available?
(3) Will the Minister advise what services are available for support to families with a child or infant with a tracheostomy, which currently has funding?
(1) Is the Minister aware that the Disability Services Commission does not have a range of funded options to support families with a child or infant with a tracheostomy?
(2) Is the Minister aware that the CATCH service is available for support to families with a child or infant with a tracheostomy, but that there is currently no funding available?
(3) Will the Minister advise what services are available for support to families with a child or infant with a tracheostomy, which currently has funding?
AnswerView source ↗
Answered
14 August 2012
Responded by
Minister for Mental Health representing the Minister for Health
Response time
63 days
(1) The Disability Services Commission has a range of funding packages that have specific criteria for eligibility, and they may or may not include the care of a child or infant with a tracheostomy.
There are families in the community with a child with a tracheostomy who care for their own child at their own home. PMH supports families with appropriate education services, ensuring the parents are confident and competent to manage the airway prior to discharge from hospital. PMH also manages the necessary equipment and training for all families with a child with a tracheostomy.
(2) The Children who Are dependent on Technology and Cared for by their parents at Home (CATCH) Program has a well determined inclusion criteria, and the infant or child must meet all of the following criteria:
a. A severe or profound disability;
b. Dependence on medical technology to maintain respiratory function;
c. Be a patient of PMH/CAHS; and
d. Be medically stable on discharge.
There is funding available for CATCH children who meet these criteria. Each child is individually assessed, and if the child fits the criteria, then a plan with the multidisciplinary team is formulated and an application is made to the CATCH Interagency Management Committee which comprises the Disability Services Commission (DSC), Department for Child Protection (DPC) and Princess Margaret Hospital (PMH).
(3) There are limited services that are available to a child with only a tracheostomy within the Health sector. It is a relatively new field of surgery and is becoming more commonplace as part of a staged repair to a child's airway. PMH has an outpatient clinic for children at home with a tracheostomy, and PMH supports the parents with equipment, education, counselling and advice.
If the child has more complex medical issues, there is not-for-profit organisation, Lady Lawley Cottage by the Sea, High Needs Unit, which is funded by PMH to provide residential and nursing support, while the child is transitioning home.
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There are families in the community with a child with a tracheostomy who care for their own child at their own home. PMH supports families with appropriate education services, ensuring the parents are confident and competent to manage the airway prior to discharge from hospital. PMH also manages the necessary equipment and training for all families with a child with a tracheostomy.
(2) The Children who Are dependent on Technology and Cared for by their parents at Home (CATCH) Program has a well determined inclusion criteria, and the infant or child must meet all of the following criteria:
a. A severe or profound disability;
b. Dependence on medical technology to maintain respiratory function;
c. Be a patient of PMH/CAHS; and
d. Be medically stable on discharge.
There is funding available for CATCH children who meet these criteria. Each child is individually assessed, and if the child fits the criteria, then a plan with the multidisciplinary team is formulated and an application is made to the CATCH Interagency Management Committee which comprises the Disability Services Commission (DSC), Department for Child Protection (DPC) and Princess Margaret Hospital (PMH).
(3) There are limited services that are available to a child with only a tracheostomy within the Health sector. It is a relatively new field of surgery and is becoming more commonplace as part of a staged repair to a child's airway. PMH has an outpatient clinic for children at home with a tracheostomy, and PMH supports the parents with equipment, education, counselling and advice.
If the child has more complex medical issues, there is not-for-profit organisation, Lady Lawley Cottage by the Sea, High Needs Unit, which is funded by PMH to provide residential and nursing support, while the child is transitioning home.
Notice: This document is created or edited using unregistered or evaluation copy of rtLib valid for testing or development purposes only. To use it for productive or any other purposes please register it. You may purchase the license on
http://www.rtlib.com
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